Oh NO, ANOTHER POST about Tysabri

~ msgracefulnot

Actually, it’s not really about Tysabri, but I do want to talk about it for a minute.  ( Which we all know will be 700 words about Tysabri)….Well maybe not, I’m still “precoffee”.  Anyway, I digress…Yesterday and this morning I received numerous texts and messages wishing me well and seeing if I was ok because it was Tysabri infusion day, and to be honest the drug does “kick my ass” FOR A DAY.  Only for a day.  Before I started it, MS was kicking my ass EVERY DAY!  Ok, I was letting MS kick my ass everyday, either way it is only for ONE DAY.

I slept all day yesterday.  (Well my brain did.)  There is evidence that my body attempted to function because their is a full ashtray by the couch where my cross- stitch sits.  (Somehow more of that is completed too?!!?)  My dogs, aren’t completely up my ass so I must have fed them too… Einstein ate (Evidence of an empty bag of CHEEZITS is on the floor next to his desk)….smh

My tummy isn’t rumbling, so I must have handled that too.  THAT is actually the reason I am writing this morning.  There are so many worse things in the world.  I am not hungry, I have a roof over my head, my kids are healthy, and I am fortunate enough to still have both of my parents in my life.  The point is THINGS COULD BE ALOT WORSE.  Losing ONE DAY a month to treating MS is so much better than the every other night shot, followed by a day of fever, chills, and vomiting.  I’ve GOT this!  (and apparently a day of catch up)….lol

no coffeeI have been waiting for coffee the entire time I rambled this only to find that the coffee machine (ok ok Espresso machine) is broken.  OMG IT WONT TURN ON!!!! No pretty blue lights (YES IT IS PLUGGED IN)  The button won’t even push…..GRRRRRRR… OMG, Now I do need help!!!!!!  DOES ANYONE DELIVER?!??!back up coffee

HEH!  Anyone that knows me in real life KNOWS I have a back up plan, and a back up coffee maker, and a backup pack of cigarettes…and and and…. But Seriously, My Espresso machine is broken and I do have to play “catch up” from yesterday while attempting to function on 1/4 of my daily caffeine intake. 😦

I hope everyone has a fantastic day today and a great weekend 🙂

If you happen to have any free time, please send or deliver coffee.  OR… stop by My coffee pinterest board and add your favorite pin or post it on my Facebook page?  Have a Great weekend everyone! 🙂  See you next week!

Photo credit: http://www.capejava.com/

 

 

 

 

Published by msgracefulnot

So hard when someone says tell me about yourself...what do you want to know?

15 thoughts on “Oh NO, ANOTHER POST about Tysabri”

    2. I’ve been pretty much drinking espresso all day for over a year now…coffee just doesnt have the same kick 😦 but no, no one close will deliver, they know too well what I am like without my daily 18 pots 🙂

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      4. https://www.deathwishcoffee.com/
        I swear I’m not a salesman….lol but it leads me to ANOTHER story.. For Christmas a couple years ago, my daughter bought me a bag and a mug, ( they were both sitting on my desk unwrapped and she was waiting for me) I did ask her if she was trying to kill me, told her she wasn’t in my will if I died, AND made her make it just in case :P… It was great! and they made espresso bean chocolate…and did I mention I’m precoffee?…damn espresso maker is broken 😦

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  3. It is so insane how MS kicks our ass and then the treatment kicks our ass as well. I was on Tysabri for 2 months but it made me sick for 3 days after. I just could not keep food down. I wish I lived closer because I would deliver you coffee or espresso and even cigarettes, I have to buy them anyway for my husband.
    You are so right saying things could always be worse. Life gets so crazy sometimes people tend to forget that! I really hope you have a nice and peaceful weekend!! Take care and much love to you!!!!

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    1. THANK YOU ALYSSA! HUGS!!!! I am mobile, I found coffee..the problem is not being able to consume it quick enough. I wish I could get it in IV form ( stick it right in my port) ah but then I would probably still drink it because I like the taste. lol. You’re doing Gilenya right? I know the drugs help us, but with you, I think your attitude is your strongest weapon! Enjoy your Sunday! If you have time later send me a message, I would like to hear how your return to work is going.

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