Month: December 2017

A day of Needles

~ msgracefulnot ~ 18 Comments

Today’s day as a “professional patient” consisted of Needles.  Actually not lots of needles, only two, but for me TWO IS TOO MANY!!!!  First Stop this morning was PTNS or Percutaneous Tibial Nerve Stimulation for those of you that like BIG SCARY WORDS.  The purpose?  To help with Bladder Incontinence.  While it does help, it doesn’t FIX IT, at least for me.  Considering the options for Incontinence Treatments, other than taking yet ANOTHER PHARMACEUTICAL DRUG, or having another surgery, this one is not too bad and it is only for one half hour a month with an acupuncture type needle.  I will take it.

Percutaneous Tibial Nerve Stimulation Video

After that was done, I got to visit with the “Vampires” (blood thirsty blood drawers that they are)…. but yah only one stick this time!!!!

They wouldn’t let me take a picture of the blood draw…silly Hipaa laws…. It is still my body isn’t it?   (For anyone reading this that is not from the US, Hipaa is another example of all the ridiculous laws we have in the United States……

All in all not a bad day, and to be honest, I wanted to see how adding a video on wordpress worked.  If anyone clicks on it, can you tell me what you think?  I’m always trying to learn new things.  On that note, Have a great weekend everyone! 🙂

12 Days of Christmas … in my world

~ msgracefulnot ~ 14 Comments

It all started with, “Are you ready for Christmas?”  My brain went into overdrive and again I was paralyzed by too many thoughts at once.    The things I LOVE about Christmas are the same things I HATE about Christmas.

I’m going try to make this a “12 of the same things I love and hate about Christmas thing”  in the spirit of the 12 Days of Christmas Song.  So here goes my Brain Dump.

The First Day of Christmas

I Love that people TRY to be kind to or to do things for others that they don’t normally take the time to do.  Many people get in the “spirit” of volunteering.  I Love the Spirit of Christmas, but I hate that it only happens one day a year.  Why aren’t people nice to other people every day?  Why don’t people have that SPIRIT EVERY SINGLE DAY?!?!?

The Second Day of Christmas

Gift giving. When I was younger, I used to love giving gifts.  As a child, I loved making those horrible little crafts for my parents and friends.  Once I got a job, I was happy to be able to purchase things for my friends and parents that they would not normally have spent the time or money on for themselves.  Then I had children.  I loved the joy they had looking at all the presents under the tree, thinking that for at least one moment in their lives I was able to make everything perfect.  Not because I had spent $100’s of dollars, they would have been happy with just a box at that age.  Then the hate part kicked in.  Somehow gift giving became a requirement and/or stressful.  The gifts became more expensive and then the kids just wanted gift cards or money.  My parents on the other hand wouldn’t let me buy them presents.  They started saying sensible shit like, “I have everything I need”, or “What we would really like is more time with you”.  Damn parents always raising that “How to be a good person bar”….grrrrrr

The Third Day of Christmas

The other side of the coin.  The negative nelly’s come out of the woodwork.  Comments like, “Seriously, you’re putting up your tree in October” start appearing all over social media.  If you have done that, do me a favor and ask yourself “Why do you care?”  Are you angry that someone is excited and wants to celebrate?  Don’t get me wrong, I have thought that October is maybe a bit early, but that is MY OPINION. I don’t go slamming people on Facebook about it.  YAH YOU!!!!  In reality, I wish people had a reason to be happy everyday, so I will just be happy for you that putting up your tree in October makes you happy.

The Fourth Day of Christmas

Family Time.  I love spending time with my family. I love that some companies give their employees time off to spend time with their families.  I HATE that some people don’t have a family to spend time with, and that they only time some people are able to make the time to see their families is on Christmas.

The Fifth Day of Christmas

I HATE that I won’t be able to spend Christmas with my grandmother this year.  She was my favorite person in the entire world.  (even smarter than my parents 😉 )  I miss her everyday.  I LOVE that I had such an incredible person in my life, and that I have so many wonderful memories with her.  I even loved that she called me “Awwwsshhhluck”.  I have no idea how to spell that or what it actually means, but she thought it meant “shithead” or troublemaker in German, so I will stick with that.

The Sixth Day of Christmas

This is a lot of work, I don’t think I am going to continue counting days.  Before I climb off my soapbox though, I have a favor to ask of anyone reading this.  Please remember that everyone is different and has their own experiences with the holidays, some good some bad.  If you don’t have anything nice to say, then don’t say anything please.  In return, I am offering everyone a gift of my time.  If you are feeling sad or lonely, or just need to vent give me a shout out.  I hope everyone enjoys their Holidays!  Again, if you are struggling I am here.  I can’t promise to fix it, but you won’t be alone. …

 

 

Do you look like your pet?

~ msgracefulnot ~ 10 Comments

As I laid my head on my “dog pillow” the other day, I noticed  that our hair consists of the same colors (blonde and black).  It made me recall  a meme, post, article, or video that I have seen that showed numerous pictures of dogs and their owners with very scary resemblances. I began to wonder if there were other similarities… while my mouth is always open like hers seems to be, ( I talk ALOT) I think I have a bit better control at keeping my tongue inside my mouth. Then again, I also think  people that know me in real life have plenty of pictures of me sticking my tongue out.  (Not sure if it counts that I stick my tongue out on purpose, I think my dogs tongue just hangs out.)  I don’t think my ears are nearly as big, or my nose for that matter, but we definitely have the matching hair color thing going on.  By the way, my GSD’s name is SNUFF.

My other dog is D.O.G. (not dog, but each letter individually, D.O.G).  I think she thinks her name is MOVE, GET OFF THE COUCH, and YOU’VE GOT TO BE FRICKING KIDDING ME, though.  She looks at me whenever I say those things so maybe, poor D.O.G.

dog soloActually there is nothing poor about D.O.G., she is spoiled rotten. She is allowed on my bed, she gets lifted into the car, she even sits in the front seat, and for being the smaller of the two (three if you count me) she is the ruler of the “bitches”.

cats

 

 

I will save the discussion of my three cats for another day, but Foxy, the white one, rules the whole house.  As usual I digress….

So about D.O.G…..

I have always been an animal lover, but the last dog I had was hit by a car, and killed while a friend was “petsitting”.  (That was almost 15 years ago.)  It took me seven years before I could bring myself to get another dog, and the initial reason I got her was for companionship when my MS put me in a wheelchair.  Over the years, we have become codependent.  I don’t like to sleep without her and she doesn’t like me leaving the house without her.  So I guess it works?

dog and mom
Isn’t she cute?

OMG am I ADHD!!!  The point is, do I look like D.O.G?  If you ever saw me “precoffee”  I am sure I do.

I love how her teeth are spaced like that!  And ok maybe we both have a face that only a mother could love 🙂

So that’s it!  That’s my life in a nutshell.  Beautiful children and animals, coffee and cigarettes, and lots of horrible prescriptions for a nasty monster of a disease.  MS really sucks!my life in a nutshell

When I was telling a friend about the do pets look like their owners meme, she says, “Oh yes, I can totally see you and snuff…..you even cock your head to the side like she does when someone is talking to you and you don’t understand”…..SMH FML and all that.

Thank you all for reading along.  One day I will actually get to the point of why I started this blog and talk about how to cope with MS, depression, ADHD, etc, but for now I am having so much fun meeting new people and those things just plain suck to think about.

Do you have any pets? Do you look like your pets? Do you know anyone who does?  Please feel free to share them to my facebook page if you do.  🙂

 

 

 

 

Oh NO, ANOTHER POST about Tysabri

~ msgracefulnot ~ 15 Comments

Actually, it’s not really about Tysabri, but I do want to talk about it for a minute.  ( Which we all know will be 700 words about Tysabri)….Well maybe not, I’m still “precoffee”.  Anyway, I digress…Yesterday and this morning I received numerous texts and messages wishing me well and seeing if I was ok because it was Tysabri infusion day, and to be honest the drug does “kick my ass” FOR A DAY.  Only for a day.  Before I started it, MS was kicking my ass EVERY DAY!  Ok, I was letting MS kick my ass everyday, either way it is only for ONE DAY.

I slept all day yesterday.  (Well my brain did.)  There is evidence that my body attempted to function because their is a full ashtray by the couch where my cross- stitch sits.  (Somehow more of that is completed too?!!?)  My dogs, aren’t completely up my ass so I must have fed them too… Einstein ate (Evidence of an empty bag of CHEEZITS is on the floor next to his desk)….smh

My tummy isn’t rumbling, so I must have handled that too.  THAT is actually the reason I am writing this morning.  There are so many worse things in the world.  I am not hungry, I have a roof over my head, my kids are healthy, and I am fortunate enough to still have both of my parents in my life.  The point is THINGS COULD BE ALOT WORSE.  Losing ONE DAY a month to treating MS is so much better than the every other night shot, followed by a day of fever, chills, and vomiting.  I’ve GOT this!  (and apparently a day of catch up)….lol

no coffeeI have been waiting for coffee the entire time I rambled this only to find that the coffee machine (ok ok Espresso machine) is broken.  OMG IT WONT TURN ON!!!! No pretty blue lights (YES IT IS PLUGGED IN)  The button won’t even push…..GRRRRRRR… OMG, Now I do need help!!!!!!  DOES ANYONE DELIVER?!??!back up coffee

HEH!  Anyone that knows me in real life KNOWS I have a back up plan, and a back up coffee maker, and a backup pack of cigarettes…and and and…. But Seriously, My Espresso machine is broken and I do have to play “catch up” from yesterday while attempting to function on 1/4 of my daily caffeine intake. 😦

I hope everyone has a fantastic day today and a great weekend 🙂

If you happen to have any free time, please send or deliver coffee.  OR… stop by My coffee pinterest board and add your favorite pin or post it on my Facebook page?  Have a Great weekend everyone! 🙂  See you next week!

Photo credit: http://www.capejava.com/