Horses, not Zebras

This is probably another post that I should call, “Oh look a squirrel” .  I want to tell you about Thursday’s post op visit, but I am distracted by the Shocking sensation that seems to be taking over my body.  So let’s start there.

I have said before numerous times that for me, the worst parts of having Multiple Sclerosis are the unpredictability of the disease, the struggle to adjust to new symptoms, and the fear that they might become permanent.

When a new symptom shows up, you might wonder if it has anything to do with MS.  Is there something new in your life that is causing more stress? Did you eat the wrong foods?  Did you overdo it?  Maybe you are just sick?  SO MANY questions…..

Today is one of those BAD days for me.  I woke up this morning feeling “dizzy”.  I had not even gotten out of bed but something didn’t feel right.  As I moved to sit up, I felt like I had “the spins”, so I quickly laid back down.

As I began to take “inventory” of my body, I acknowledged the feeling of SHOCKS or Zapping in almost all of my appendages each time I moved them.  Well now what?  Laying in bed all day is not an option.  I mean it, could be, but I hope not.  Is anyone else home, if I try to stand up and my body doesn’t cooperate?….

Take some deep breaths Grace!!!!

How is that gonna help?!?!? What is that gonna fix?!?!?!?  To be honest, it’s not going to FIX anything.  BUT, it will allow you to calm down and focus on the present.

After calming myself down, I was able to focus on what I was feeling at the moment.  I am/was scared.  Am I having a flare up?  I did just have surgery.  I also currently have a UTI ( yah foley catheters)  It’s also slump week.  (even more than that, I am a week late getting my infusion)  When you hear hoof-beats think horses, not zebras right?

So my plans for today will have to wait.

I will post again after I have had my infusion, or when the world stops spinning here.

 

 

So….. not what I was expecting…..

A parade?  For me?  How Exciting!!!!

But not even a little bit true.

Let’s start at the beginning…..

😦 no the beginning would take to long

where to start?   where to start?

Ah, just go with the flow…. let’s start with the picture I have posted.  Apparently, it is homecoming weekend for our school district.  I had no idea. As I watched the band, and trucks pulling floats assemble outside my house yesterday, my mind traveled to a different time. In some ways this makes me feel incredibly old, because I have been there and done that.  I participated in Homecoming events, not only when I was in High School myself, but also as each of my daughter’s were.  Wow that feels like I lifetime or two ago!

At the same time, I’m not done with Homecoming.  In as short as 15 years or so, I will have Grandchildren that might be participating in Homecoming.  I will be telling the story…..” when I was your age we had to walk 10 miles through the snow, Uphill to get to school…etc.”  ( Ok that’s MY grandma’s story, but you get the point)

I wonder how different the world will be even in just the few years.

Yesterday, while sitting in the waiting room for my 3 week post op visit, (more about that soon) my mind started to drift to a post that I read earlier this week, by Bojana at Blogging with Bojana.  In her post she talks about spending time with her young son at the playground.  She writes…

Another good thing I’ve noticed spending plenty of time in the sandpit with toddles is the presence and acceptance of all the colors of the rainbow, that is an utter and complete absence of racism and xenophobia in their world. While there’s possessiveness and envy of another kid’s bigger and shinier toy, there’s no discrimination based on ethnicity, nationality, religion, appearance or disability. The society has yet to teach them hatred and prejudice, giving rise to inequality and aggression.

20180927_145626As I thought more about her post, which you can read in its entirety here. I thought that I had the condition for the beginnings of Utopia right in front of me.  I may be misusing the word, but here is the definition I am trying to describe…

u·to·pi·a
yo͞oˈtōpēə/
noun
noun: Utopia; plural noun: Utopias; noun: utopia; plural noun: utopias
  1. an imagined place or state of things in which everything is perfect. The word was first used in the book Utopia (1516) by Sir Thomas More.

Even though we are all sitting in a Doctor’s office, and there is still pain and suffering, as individuals, no one was adding to someone else’s discomfort.  Young, old, black, white, blonde, brunette, bald, overweight, underweight….we were all there coexisting.  Peacefully.

That is the kind of world I hope to see my grandchildren raised in.

In the beginning of the post, I said I didn’t know where to start, so I just started typing/rambling.  I actually intended to tell you about my post op visit, but as I “reviewed” yesterdays events in my mind, my foot became very insignificant. I am not going to say anymore about Homecoming, memories, hope for the future etc or even my foot notes…..  I made a funny ( at least in this post)

Instead I want to ask you for your feedback.  Don’t you think the world would be a better place if instead of drawing lines that separate us from one another, we focused more on the common goal of helping everyone “make it”? all making it

Great reminder from Walk a Myelin* My Shoes

Earlier today I read a post that reminded me of a topic I had wanted to discuss many times, but had never gotten around to.  Amanda, at Walk a Myelin* My Shoes wrote this post today, that I think everyone who has to ask someone for help, myself included, should remember.   BE Kind and Thankful for the people that are there for you.  But not only that…. REMEMBER to THANK them.

I reblogged this on my page a few minutes ago, in an effort to share her post, but I don’t know if I did it correctly.  If you have a minute, please take a minute to visit her post on her page at the link above.

We’ve all held the door for someone without receiving thanks.  Maybe you have let someone with a smaller cart checkout in front of you?  Doing those things and helping people for the most part makes us feel good about ourselves, when it is our choice to do them, and it’s an added bonus when the person you help Thanks you.

I’d like to share a story that while I am not ashamed of, I am not particularly proud of.  I’m not going to go back and “fix, or undo” it, but I do try to be better than that now, and I really try to remember to thank the people I have to ask for help.

Ok so here’s the story….

When Thing One and her husband started dating, he lived in Michigan and she lived in Il.  I am so thankful that the kids have decided to make Illinois their home.  I felt bad for Z’s mother, who has several physical limitations, that she would not be able to see the kids as easily.  Once the kids decided to get married, Z’s mom, (we’ll call her T) decided that she wanted to move to Illinois to be closer to our kids and potential grandchildren.  She asked for my help.

I have learned the hard way in the past, (and I am still learning) that it’s important to set boundaries when you help someone.  One boundary I try to place is that I will happily TEACH you how to do anything I can, but I won’t do things FOR you, if you are capable of doing them yourself and chose not to.

I helped T find maps, handicap accessible apartment websites and phone numbers, and offered to take her to the buildings if she did all the other prep work of reviewing the websites, and scheduling appointments.  That process wasn’t without it’s issues, but we did it.  She came to Illinois to stay with the kids for 4 days, and Friday was the day I would show her around and take her to her appointments.

When I arrived at Thing One’s to pick T up, they (Thing one and T) weren’t quite ready and neither had eaten breakfast, so I offered to make eggs for them both.  I asked, T how she wanted her eggs,  ( which is more than I did for Thing One) and she replied “Over medium”.  Ok, I will give it my best shot.  I made her eggs first, and when I placed them in front of her she made a face and said, “I guess I can work with that”.

Deep breath Grace!…Deep Breath! ( no I did not throw the plate in her lap)…..  I did look at Thing One though, who instantly gave me an apologetic look.  ( l love that my kiddo and I can communicate through facial expressions and body language so well)  Next I made Thing One’s eggs and placed them in front of her.  She replied, “Thank you.”  (Yes I had to point out that my daughter has simple manners).  Finally, I finished my own eggs.  (the same way I made T’s) eggs.  I sat down to eat and T immediately said, ” well that’s how I wanted my eggs, that looks good.”

WOULD YOU LIKE MY FUCKING EGGS?!?!?!?

What I actually said was,  “If you would like my plate, I will happily trade you.”  She dismissed me and began to eat from her own plate.

Several times throughout the day she barked at me that I was doing something wrong, or this wasn’t what she wanted.  I really really tried to be patient, but after seeing 4 different apartment buildings, and constantly being told I was incorrect, I made up an excuse that I needed to be home for Einstein for something, and took them back to Thing One’s.  (sorry kiddo, I did what I could….but she’s all yours)  and yes I did say that in her ear as I hugged her goodbye.

For the remainder of the evening I tried to offer Thing One appropriate responses to her future mother in law  (via text ) as she got on Thing One’s nerves more and more.  I was also supposed to hang out with the kids and T on Saturday for a couple hours.

When I got there on Saturday, I told both of the kids I was only staying for one cup of coffee, and asked which excuse they would like me to give about why I wasn’t staying longer.  Since the kids were “entertaining”, I offered to make everyone coffee.  Thing One wanted hers with creamer, no problem.  Z wanted his with a scoop of sugar, also no problem. I don’t even remember what T wanted in her’s because I honestly I had had ENOUGH of being told how many things I did wrong…

Here comes the not proud part

I placed T’s cup in front of Z and told him, “Here, YOU fix her coffee for her, because if  she tells me I did ONE MORE thing wrong, she will wear it”.  T gasped and looked up at me saying, ” Oh do you mean about yesterday?…. I was only joking!!!!”

Uh huh.  I quickly drank my coffee, made my excuse to leave, and wished T an enjoyable rest of her trip.

Yes I know that was wrong and very passive aggressive of me.  As I said I’m not proud.  But I think it illustrates my point.

A year has passed since that day, and while I have not been MEAN to Z’s Mom, I have not been helpful in ANY WAY.  Normally I would have spent some time at the kids wedding in March with her, making sure she was settled in ok etc.  I didn’t, other than to make sure the obligatory newlywed’s with their mom’s picture was taken.  I have not shared any of the kid’s ultrasound pictures with her (as I would have in the past).  I know that it’s not my job to do those things, but that is who I normally am.  The one who tries to treat everyone like they would like to be treated.

I’m sure I will have more dealings with T in the future, and any help I give will be because I chose to help not expecting anything (even a thank you in return) I know that this is the way it is supposed to be, but I am human, and would at least like a Thank you.

Thank you for reading along today.  Do you get bent out of shape too, when a Thank you is not spoken? I think we all do a bit.  PLEASE remember to thank people who are kind to you, or that you rely on for help, it can really make a huge difference.

**** I didn’t realize until reading some of your comments, that I neglected to add that at this time, T still resides in Michigan.

The Ones Who Stay

Walk a Myelin* My Shoes

Wedding, love, commitment, relationships

They gave each other a smile with a future in it. –Dream a Little Dream (1989)


Many say the words, then real life begins. Money-Children-Family-Work-Sex-Hormones-Communication-Health. So much joy, so much stress. How to keep the train on the tracks?

Relationships are difficult at the best of times. When chronic illness invades that relationship, whether through one of the partners, a child or another family member, the pressure of the everyday realities of chronic illness creates a potential power imbalance that not all partnerships are able to withstand.

One of my very first posts, Shoutout to Partners, was not planned until I read the plethora of Facebook posts about chronically ill people being abused or abandoned by their partners. Helplessness, resentment, financial burdens and sadly disbelief, seem to be the primary reasons partners flee.

So what about the ones who stay? The ones who are there to pick up…

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Pushing my buttons…. battle of the sexes

Memories……

MS Graceful...NOT!

OMG, I don’t even know where to start!!!!!!  Have you ever had a “battle, argument, disagreement or whatever” with someone that started as a somewhat serious issue, but just turned into the most laughable, ignorant thing ever.   I am having so much trouble finding the words…… but Einstein has done it again…...DAMN BUTTON PUSHER!!!!

Ok So here’s the thing…. I am very very organized and have OCD about the cleanliness of my house….. most importantly things NOT being left on the floor.  I can, and frequently do, trip on air, and have broken many bones from falling etc.  ( to be honest though, I have probably always been OCD)  Either way, I hate things on the floor!!!!!

Einstein has an issue with ….you guessed itleaving things on the floor….most notably his laundry.  I have two hampers set up in our bedroom, the black one for his…

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