Twilight Zone Morning

Ok not quite twilight zone, more a I need more coffee morning, but I’m rambling anyway.

I woke up this morning and had peed the bed. While I can’t say this hasn’t happened before, it’s not supposed to happen.  I just had bladder surgery  a month ago, and PTNS this week.  I am supposed to be “pee free” for a few more months at least :(.

Ok whatever, I opened my bedroom door and found my Mom sleeping on my couch.  Hmmm that’s not where I left her last night.  I went to the bathroom , cleaned myself up, and proceeded to let the dogs outside.

While going through the kitchen, I was met by thing 2’s boyfriend looking super chipper, telling me all the animals had been fed except for D.O.G. (who sleeps with me).  I let the dogs outside, and came back in to find a cup of coffee waiting for me on the counter. ?!?!?!?!?

I stood at the counter trying “figure out where I was”, and I glanced down at the letter for a driving class beginning at 8:30….oh fuck did I get Another speeding ticket and forget about it?  Crap crap crap

Then my phone went off, it was the 4th “Are you awake text” from one of thing 1’s best friends.  ( They had been coming in since 5:30).

D, picked up the letter and headed toward the door.  Ah yes…it was his ticket, he had class.  (I’m very surprised I was able to put that together, and even more so that I told him the answer to number 15 on the test is 12-15 inches.)

Four cups of coffee later

I have finally been able to put most of the pieces together.  Let’s go back to the beginning.

The peeing thing.  Ok, this one still makes no sense, and will require a call to the doctor, but at least I was wearing depends last night and had slept on a waterproof pad, so clean up was not terrible.  I am a bit nervous that I am having an MS flare, or that I will have to start looking for yet another treatment, but I will not allow myself to dwell on that til next week.  (I’ve got more important things to do)

My confusion about seeing thing 2’s boyfriend looking all chipper at 8 o’clock in the morning.  As I mentioned before, apparently HE had to attend the driving class.  Let me elaborate on my confusion more.  First of all, D works overnights.  The NORMAL interaction between us in the morning is ME heading out the door telling him the animals have been fed.  I normally tell him the coffee maker has been set up for him.  And I am usually the one who has to attend the driving class.

When you receive a speeding ticket in Illinois, you have the option of attending a 4 or 8 hour defensive driving class.  If you pay extra to attend the class, pass the test, and stay ticket free for 6 months this will keep the ticket from appearing on your record so that your insurance doesn’t increase.  I have attended the class enough that I can teach it.  The question to the answer I gave him as he walked out the door was, ” How far from your chest should your steering wheel be positioned?”  The answer on the test is 12-15 inches, although I still maintain it SHOULD be, however far you need it to be….smh

The multiple texts from KR

The last time I had a morning interaction with KR and Thing One, it was to fight to wake them both up at 10 in the morning after a sleepover.  After answering her, “are you awake” text, I am happy to report that it was for  an exciting reason.  KR is pregnant.  Both girls have been texting back and forth for hours planning how their children will also grow up being best friends etc……  I have to smile here.  For many reasons.  I am glad that KR feels I am important enough to receive one of the first, I peed on a stick calls.  I am excited that both girls are in a much better place than I was when I found out I was pregnant.  I am excited that they have both matured into beautiful intelligent hardworking woman.

Why is my mom on the couch?

I’m still not sure about this one.  I’m also not sure why I am letting her sleep.  (payback’s a bitch) 😛  I do know why she is here though.  She came to stay the weekend with me while we get things ready for my daughter’s baby shower tomorrow.  I am so lucky that I was raised in a family that is so tight nit.  My heart is so full this morning.

I hope you all have an incredible weekend.  Lots to be done here, and more coffee to drink.

 

 

 

Not your typical Blogger Award revisited

Revisited? re awarded? Whatever the case, last year I wrote a post, Not your typical blogger award, in which I decided to share some of my favorite blogs with you. I would like to do that again now.

The blogs that I have chosen to list are the ones that make me laugh, or even just really think the most.  I have purposefully NOT included the blogs I follow about MS, or other chronic illnesses, because AGAIN, today is just NOT an MS day for me.  If you are interested in hearing a list of chronic illness bloggers, let me know.  (I have some great motivating and inspirational recommendations.)

The first blogger I would like to recommend is, Tom from Tom Being Tom.  Of course I have to direct you to a fabulous post that Tom wrote about me, Graced (I can’t resist the free publicity.)  Seriously though, let me talk about Tom for a minute.  Tom is the 2nd blogger, I have read every post they have written.  (The first was superman, who I previously nominated for this award.)  There was no challenge to read Tom’s words, it was a pleasure.  Sometimes serious, sometimes light hearted.  Sometimes, (ok frequently) Tom writes about sports and politics, but imo he makes up for that when he shares his love of his wife and his fur babies, Ludo and Moxie.  If you have some time, do yourself a favor and give him a read.  (If you haven’t clicked on one of the links to his posts above, start here.)  This is my favorite.

Up next is Lisa, the writer behind All About Life.  Although Lisa is a relatively  “new kid on the block”,  you wouldn’t know it by the number of followers she has racked up in the few short months that she has been blogging.  There is not just one word to describe Lisa, but here  is one….  CANDID.  Refreshingly Candid.  I don’t remember how I first discovered her blog, but I am certainly glad I did.  In fact, I think she is the next blogger I will be going back to the beginning to read (once I finish rereading the posts I have made) If you are looking for a place to start (not the beginning but an insight into her personality, may I suggest. Refusing to Grow up.

My final recommendation is the blog Lockwood Echo.  While I don’t actually know her real name, Lockwood works for me.  I can’t think of a better way to recommend her than to share what she says about herself on her The Editor page….

The Lockwood Echo was born from a collection of random musings and a wish to collate what I thought may be of interest or side-splittingly funny.

Using humour to deflect rage or feelings of misjustice and trying to make people think I’m wickedly witty has been a game-plan of mine for many a year. It’s self-preservation when life hits melting point. It’s also not healthy to bottle up so much sarcasm. It’s best I let it out.

She does this quite well!  While reading her posts, I promise you will feel….”omg that has happened to me” or maybe be glad that it didn’t. (though you might not admit it as she does.)  If you need a place to start, check out,  then there was that time series.

I’m going to end this post now, as I have much more reading to do.  Please take a minute and look at the blogs that I have listed.  I promise you will not be disappointed!

 

So….. not what I was expecting…..

A parade?  For me?  How Exciting!!!!

But not even a little bit true.

Let’s start at the beginning…..

😦 no the beginning would take to long

where to start?   where to start?

Ah, just go with the flow…. let’s start with the picture I have posted.  Apparently, it is homecoming weekend for our school district.  I had no idea. As I watched the band, and trucks pulling floats assemble outside my house yesterday, my mind traveled to a different time. In some ways this makes me feel incredibly old, because I have been there and done that.  I participated in Homecoming events, not only when I was in High School myself, but also as each of my daughter’s were.  Wow that feels like I lifetime or two ago!

At the same time, I’m not done with Homecoming.  In as short as 15 years or so, I will have Grandchildren that might be participating in Homecoming.  I will be telling the story…..” when I was your age we had to walk 10 miles through the snow, Uphill to get to school…etc.”  ( Ok that’s MY grandma’s story, but you get the point)

I wonder how different the world will be even in just the few years.

Yesterday, while sitting in the waiting room for my 3 week post op visit, (more about that soon) my mind started to drift to a post that I read earlier this week, by Bojana at Blogging with Bojana.  In her post she talks about spending time with her young son at the playground.  She writes…

Another good thing I’ve noticed spending plenty of time in the sandpit with toddles is the presence and acceptance of all the colors of the rainbow, that is an utter and complete absence of racism and xenophobia in their world. While there’s possessiveness and envy of another kid’s bigger and shinier toy, there’s no discrimination based on ethnicity, nationality, religion, appearance or disability. The society has yet to teach them hatred and prejudice, giving rise to inequality and aggression.

20180927_145626As I thought more about her post, which you can read in its entirety here. I thought that I had the condition for the beginnings of Utopia right in front of me.  I may be misusing the word, but here is the definition I am trying to describe…

u·to·pi·a
yo͞oˈtōpēə/
noun
noun: Utopia; plural noun: Utopias; noun: utopia; plural noun: utopias
  1. an imagined place or state of things in which everything is perfect. The word was first used in the book Utopia (1516) by Sir Thomas More.

Even though we are all sitting in a Doctor’s office, and there is still pain and suffering, as individuals, no one was adding to someone else’s discomfort.  Young, old, black, white, blonde, brunette, bald, overweight, underweight….we were all there coexisting.  Peacefully.

That is the kind of world I hope to see my grandchildren raised in.

In the beginning of the post, I said I didn’t know where to start, so I just started typing/rambling.  I actually intended to tell you about my post op visit, but as I “reviewed” yesterdays events in my mind, my foot became very insignificant. I am not going to say anymore about Homecoming, memories, hope for the future etc or even my foot notes…..  I made a funny ( at least in this post)

Instead I want to ask you for your feedback.  Don’t you think the world would be a better place if instead of drawing lines that separate us from one another, we focused more on the common goal of helping everyone “make it”? all making it

Post op update

So many of you know that I had surgery on Tuesday, but I don’t know if I have ever explained the history to why I needed the surgery, or what the surgery was for.

Two years ago, I broke the first metatarsal in my right foot.  I was in a walking boot for a total of 6 months off and on.  During the treatment, I had cortisone shots, physical therapy, and was diagnosed with Osteopenia.  I had custom orthotics made for my shoes etc.  For the last two years, the pain has always been there, but it has been bearable.  When I would over do it, the doc would advise me to wear the boot for a couple of weeks or use my wheelchair , do R.I.C.E. therapy, and take some drugs.

About a month? ago when I started walking on a daily basis, my pain got worse and worse.  My foot began to be black and blue on a daily basis.  I went to see the doctor and was advised that I had gout, I DIDN’T.  I try to give everyone the benefit of the doubt.  In the doctor’s defense, I WALKED into the office, granted I was limping from the pain, but I did walk.  Maybe he thought, if I was in that much pain, I wouldn’t have been able to walk?  Whatever the case, he sent me home with an order for RICE therapy again (REST, ICE, COMPRESSION, ELEVATION)  and another RX to try.

The pain got so bad I ended up at immediate care where they finally did xrays and determined that not only had I broken my foot again, but I also had severe arthritis.   I had surgery on Tuesday.  The short story is that they cleaned up the arthritis, and have inserted a plate and screws to fuse the bones together.  I was sent home bandaged and in a CAM boot to my knee.

Here’s the part where I get really angry

Before surgery I was told that after surgery I would be placed in a non removable, non weight bearing cast until I followed up with the doctor to have the stitches removed.  I planned for that.  What I DIDN’T plan on was all the conflicting information.

I came home in a CAM (walking boot) with verbal instructions to stay in bed with my foot elevated above my heart for 3 days, applying ice 15 mins on 15 off for the same amount of time.  After 3 days, I could spend some time out of bed, but was still supposed to stay off of it and keep it elevated as much as possible.  The boot was not to come off until my first post op appointment next week.

The surgery center called the following day to see how I was doing and how often I was bearing light weight on my foot.  Had I taken the boot off to do ankle circles etc?

smh 2

HUH?!?!?!

I was told NOT to take it off?!??!?!?

My parents, who had stayed the night with me after surgery reiterated that the doctor said the boot does not come off under any circumstances and absolutely NO weight on it.

I found the written instructions from the surgery center which give me a third set of instructions and all of them are conflicting.

I’ve called the surgeons office and can only get a nurse on the phone.  Her instructions are to bear weight on my foot as tolerated.  ( walk to the bathroom with the CAM boot on, but don’t get the mail, cook dinner etc.)

Here’s another problem…. I can’t bear ANY weight on my foot.   The pain is excruciating!  How do you define as tolerated?  Is MS making me feel pain that isn’t there?

After I got home from surgery, my father told me that the doctor said he could not believe that I was able to walk at all with such a bad break, or that I had been able to tolerate the pain for as long as I had.  I don’t think I have a high pain tolerance, I think it has to do with just doing what you need to do, something I have had years of practice doing because of living with MS.  I know that MS screws with the way my brain interprets pain.

I don’t want to do more damage, or screw up the surgery.  I don’t know who to listen to.  I don’t trust my own ability to make decisions because of the pain pills, and I’m very emotional……not to mention bored out of my mind.

I don’t expect anyone to give me answers or fix this for me, I just needed to get it off my chest, and did want to let everyone know that I did survive surgery and really appreciate all the thoughts, prayers, and well wishes.

I am going to go with the thought that even the doctors don’t know, after all they are just practicing.  ARGH…..

 

Too Many to count

I’m not just talking about the number of speeding tickets I have had. (although that number almost equals the number of years I have been driving) YIKES!

I’m talking about the number of times I have been “put under”.  When you get general anesthesia, you’re “put under,” which means that you’re totally unconscious and immobilized. You “go to sleep” and don’t feel, sense or remember anything that happens after the drugs begin to work on your system.

My very first surgery was having my wisdom teeth removed when I was 16.  Between that time and my most recently scheduled surgery (having screws and a plate put in my right foot on 9/4/2018)  I have lost track of the number of times I have been put under.

I really do need to keep better records.

The most notable surgeries were:

  1. an emergency C-section with Thing One
  2. a hysterectomy
  3. CMC joint replacements in both my hands
  4. the power port being placed in my chest (on valentines day…smh)
  5. a laminectomy of my thoracic spine
  6. and my every few months Botox in the BLADDER surgeries.

You could almost call me a professional surgeree?  I don’t really think that’s a word though, so let’s stick with patient.

I’m not writing this post to elicit sympathy, but rather to share some of the things I have learned over the years to help me prepare for going under.  For me, preparation for surgery begins more than a week before surgery.

The FIRST thing I do is take a look at the amount of recovery or down time that the surgeon is recommending, then DOUBLE IT.  (Most people probably don’t need to double it, but I’m going with MY past experiences, AND the whole plan for the worst, but hope for the best scenario)  Make a list of all the things that you are responsible for during that time period and begin to look for someone to COVER for you.  Your list should include the basic necessities of adulting like eating, bathing, paying your bills etc.

In my case I have purchased enough groceries for a month.  I won’t claim that they are the healthiest options available, but this will allow me to be as self sufficient as possible.  All of my bills are set up for automatic bill pay.  I have hired someone to take care of my lawn.  My kids will be grabbing my mail for me a couple times a week etc.  As far as bathing goes, I just won’t do it.  I’M KIDDING!!!!!  I have a shower chair and after the number of  medical procedures I have had performed, I have no modesty left, so my kids and some close friends are helping with that.

shower clothsIf you are not comfortable sharing that much with your family, they do sell bathing wipes that you can use by yourself.

While on the subject of modesty, BEFORE surgery is also a good time to PUT away anything you might not be comfortable sharing with friends or a caretaker.  (Don’t put spare cash for food delivery in the same drawer you stash, “OTHER” things.  If you catch my drift.

Most importantly, don’t try to be a hero, super or otherwise.  Just because you THINK you can do something, try to error on the side of caution, at least while you are on pain meds.  If you wouldn’t do the task after drinking a 12 pack, maybe wait just a little bit longer or ask for help?!?!?

drivingWhile I have figured out, kind of, how to drive with my left foot, I will be relinquishing my keys for the next couple of months.  While I have proven to myself that it CAN be done, it’s really not safe and is against doctor’s orders.  I would hate to have the issue come up if I had a flat tire, or worse was involved in an accident.

I have more that I would like to share about preparing for surgery,  especially about the night before and day of, but I still have more to do and a few days before surgery, so I will write more later.

Have you ever had surgery?  Can you think of anything I have missed?  Any funny stories to share?