Laughter is the BEST Medicine

Yesterday I let pain and confusion cloud and take over my judgment and mood.  I was so focused on what I couldn’t do that I forgot to use all the powerful tools I have at my disposal…..the biggest of which is the ability to laugh at myself.

I want to share some things with you that I hope will make you laugh, smile, or at the very least shake your head.

I wrote before about all the prep work you should do before surgery,  While I was getting groceries …….. a woman walked up to me and said, “Excuse me ma’am. I hate to tell you this, but your boots don’t match.” your boots dont match.jpg She was right.  I have no fashion sense.  It made me laugh.  Thank you random friendly stranger.  🙂

I was also racing around to make sure my house was clean, nothing to impede my movements in a wheelchair, etc.  I lost my balance, tripped, or something and came down hard ON MY GOOD leg….smh

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When I was trying to pull myself up (very difficult with the stupid boot on) I again lost my balance and hit my eye on the counter giving myself a black eye.  I swear you can’t make this shit up!!!!  I can only imagine what I looked like when I walked into the surgery center.

 

 

After surgery, when my dad was telling me what the doctor said and did, he told me and I quote, “So the doctor took off your big toe, reamed holes in your foot and then your toe, they put in a stud and then screwed your big toe back on”.  I was horrified, but I believed him. That is SO NOT what they did!!!!!  The sad thing is, when I was explaining to a couple of friends what the surgery was for, I told them exactly what my dad had said.  If they were laughing at me they didn’t let it show…..SMH….. I hope my father remembers he will be having his other shoulder replaced next year and karma is a bitch! 😛

plateBefore I continue, I THINK this is what they DID do to my foot.  Again, I won’t really know for sure until I follow up on Thursday.  I will try to take a picture also, but I have a tendency to pass out or get sick when I see or feel pain.

Ok so now let’s talk about hindsight being 20/20.  Before surgery, I wrote about “practicing” for recovery.  I went through my entire house with the wheelchair making sure it fight everywhere I would need to go.  I FORGOT that I would have a leg support on the right side of the wheelchair which adds almost 3 feet to your turning radius.  DOH!

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This has come in handy though for getting my dogs to move out of the way.  Poor things haven’t left my side since surgery.

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20180908_122505There was also this ONE time, I forgot the catheter bag was hanging under the wheelchair when I was trying to transfer back to my bed.  I only forgot ONE time, and I don’t know if I will ever find it funny, but I don’t mind if you do.

 

I’d like to share a couple more pictures, but first I need to thank everyone for all your thoughts, well wishes, moral support and encouragement, and a special thanks to my dear friend Jeri for the 4 containers of ice cream you delivered!!!!!!!

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This picture is from this morning, and although, it looks kind of gross, the swelling has gone down tremendously from the first couple days, and I do have faith that there are better days ahead.  BABY STEPS!!! literally with my GIANT boot.

Chris and Tom commented earlier about signing my cast.  I am not that technologically oriented to figure out how, but if you can feel free…. It’s a great reminder that I am not alone 🙂

My best friend Gary virtually signed my cast from my wrist surgery a couple years ago.

tiggerifficI hope you all have a great weekend!!!!!!

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Better late than never

I’m sure by now most of you have seen, heard, or been nominated for the 3 day quote challenge.  Way back on April 18, 2018, my dear friend Steve Markesich nominated, challenged, or otherwise taunted me to participate in this challenge.  As with most things, I promised to get around to it as long as I could adjust the rules a bit.

The Rules as they have been explained:

1. Thank the person that nominated you.

2. Write one quote each day for three consecutive days (3 quotes total)

3. Explain why the quote is meaningful for you.

4. Nominate three bloggers each day to participate in the challenge

My translation of the rules:

1.  Thank the person that nominated you.

Thank you Steve.  BUT, not only for the nomination.  Thank you for being a great sounding board, my being a friend, for being an inspiration to other “MSer’s”, and thank you for the cup of coffee you will be buying me for “participating”  😛

2.  Write one quote a day for 3 consecutive days.

I can barely commit to taking a shower every day for 3 consecutive days in a row, so HAVING to write for 3 days in a row…not gonna happen.  BUT, I will say that I really liked the quote you used and your explanation of why it’s meaningful to you.

You can either accept your new reality, confront it head on, and make the best of a bad situation. Or, you can curl into the fetal position, say whoa is me, lament about all the things that you’ve lost, become obsessed with the shitty hand you’ve been dealt, and wither away. In other words, you can get busy living or get busy dying.

I did watch the movie, and I really enjoyed it, so THANK YOU again for the recommendation.

3.  I don’t know if it qualifies as a quote, more a clip from the movie, “The Green Mile”.  “I’m tired Boss”.  Why it’s meaningful to me is because I AM TIRED, as John Coffey says in the movie….

Mostly, I’m tired of people being ugly to each other. I’m tired of all the pain I feel and hear in the world every day. There’s too much of it. It’s like pieces of glass in my head, all the time… Can you understand?”

4.  I’m not going to nominate 3 bloggers to participate in the challenge, instead I am going to challenge EVERYONE (well anyone who reads this)…. If you can’t be part of the solution, please don’t be part of the problem.  For one day, if you don’t have anything nice to say, Don’t say anything.  I am convinced, if everyone could do this for one day the world would not only be a better place, but it would also be a quiet one.

If you have nothing nice to say….

My parents taught me at a very young age, if you have nothing nice to say, don’t say anything at all.  (I may still have the handprints on my face or belt marks on my ass to prove it.)  Although, I don’t necessarily agree with the methods used to teach me this, I do think that it is a very important lesson to have learned.

Lately, I haven’t had anything nice to say….so I haven’t said anything.  This isn’t to say that my life is terrible, but to be honest, I don’t even like being with myself lately …..so I say nothing.  I don’t like that I am getting angry over small things, and more importantly I don’t like that I don’t understand why I’m upset.

A friend said to me today, “Are you ok Grace? I’m worried about you.”  My response was “No I’m not, but I will be.”.  I KNOW that I will be.  I don’t know when, but I will get through this slump whatever it is, just like I have 100x before.

For those of you that use music to relate or express your emotions….the song Downtime by Jo Dee Messina kind of sums up what I am feeling at the moment.  If you listen to it let me know what you think.  How do you handle those days when you’ve got nothing nice to say?

 

 

Still, I have no words…can you help?

I don’t know if you remember my post from January, Holding on when I talked about a young mother, losing her life WAY TOO SOON and not knowing how to comfort those left behind.  Although I know there is no way to FIX This tragedy,  I do believe that it’s important for Brandon to share his grief and to know that he is NOT ALONE.  I have met so many wonderful friends in this blogosphere and I am asking you to listen to and read his story and if you can please let him know that he is NOT ALONE in this.  I have included a link a blog he created last night.  Thank you all in advance

I’ve started writing this post 4 times in 4 different ways. True to form, my crazy brain makes me keep deleting it and starting over. I want to tell the story of my wife and I, i want the whole world to know that I am nothing without her and that I don’t want […]

via Episode 1: Intro to Insanity — CaptainScrublord

Boston Day Two…a day of hurdles

I probably don’t need to say that I CRASHED HARD our first night in Boston… YAH adventure? …  Getting moving in the morning was a bit of a challenge….. BUT we had reservations for A whale watch cruise and had to be there at 9:30 am to check in..so time to suck it up.

First hurdle

What the fuck is this?  Ok ok I KNOW that it is a Keurig.  I HAVE heard of them, but since I drink Coffee by the VAT (the way it was intended), I have no idea how to use one…

It’s gotta be basic right?

OK I put in a CUP of water, put the little itty bitty k cup thingy in, closed the lid, turned on the power and hit BREW…… NOTHING

OH COME ON!!!!!

I turned the machine off,  reopened the lid….  (Coffee and water were in the right spots.)  and turned it back on….while the little blue light kept flashing at me, it was still NOT  making coffee!!!!!  WTF?!?!?!  So I hit the switch next to the outlet…(since I didn’t have any coffee in my body, it didn’t register that it wouldn’t have any lights on it if that was the problem)  The switch was  for the garbage disposal….smh…. Come on, I JUST WANT SOME COFFEE!!!!!  I made enough noise cussing etc that my traveling companion surfaced and figured it out before I threw it out the door….

Next Hurdle

Coffee cup in hand, I opened the door to go outside and smoke a cigarette….and instantly FROZE.  (not the anxiety kind), literally FROZE…HOLY shit, I THOUGHT I was in Boston, NOT Antarctica!!!  Bitter cold and THE WIND!!!!  SCREW THIS….smh..

I went inside and took a nice hot shower.

After my brain thawed and I realized I was OUT of coffee, my determination surfaced.  I had not come to Boston to “hide out” inside.  I put on two pairs of leggings under my jeans, a tshirt, two sweatshirts, and my leather bomber, and ventured out to start my day.

One thing I can say about Boston, is that it has no shortage of Dunkin Donuts (literally one on almost every block), and Dunkin Donuts has COFFEE!!!!

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We made it to Dunkin Donuts, and found our way to the docks just in time for them to tell us that the Whale Watch Cruise had been cancelled because high winds and freezing temperatures made it unsafe to be out on the water.

ARGH!!!!!!

To be honest, I really didn’t want to be out in this weather anyway, but, but but……. MORE COFFEE….

 

I don’t know if coffee makes me smarter, or if it just helps me do stupid things quicker, but it definitely motivates my brain…..

whale watch guyAfter talking with Kevin from the whale watch cruises, we developed a new plan.

The 24 hour Charlie Card we purchased the day before was also valid on the Ferry, and we could use that to go to the Charleston Naval yard and see the U.S.S. Constitution and it’s museum… (YAH INSIDE STUFF)….When we were finished with that we were going to turn our planned Lobster Dinner into a Lobster Lunch and go on the Hop On and Off Trolley that was included with the Boston Go Card we purchased.

I know that I talk ALOT, to EVERYONE, but I didn’t realize just how many people I meet on a daily basis until my companions started taking pictures of me and my “new friends”.

While on the U.S.S. Constitution and at the museum…

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We made sure to explore everything that we could “hands on”

and while I was able to get into and out of the hammock “ALL BY MYSELF” with no injuries…. I apparently do not mast well…..

Thankfully the floor was “padded”, because I did try the whole 3 strikes and your out thing, and they all ended with me on my ass.  (But the picture makes it look SO EASY)

Did I mention it was really really fricking cold?!?!?  oh and windy…..

Next stop…. LOBSTER…..

We took the ferry back to Long Wharf and enjoyed the following:  (caution lots of food pictures to follow)

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While we were eating, my niece (who had gone to college in Boston) texted me that her flight from Atlanta to Boston had landed safely, she was grabbing coffee’s for us, and would meet us by the trolley.

Although, I would recommend taking a trolley ride on your first day in Boston to get the “lay of the land”, I am glad we waited til our second day. I was cold, exhausted, and completely stuffed.  Sitting down was about all I could do.    If you stay on the Trolley from beginning to end, it takes about an hour and points out several historical landmarks, but you can also jump off at any of the stops and reboard just as easily.

BIGGEST HURDLE YET… Uneven surfaces

When you can’t feel your feet ( a normal ms symptom for me) uneven surfaces always create a challenge, but when you lose all muscle control in your leg (thankfully NOT a normal symptom for me) uneven surfaces and curbs like these look like 2 foot tall barriers.

After the trolley ride, we decided (more like my body decided) that we NEEDED to be done for the night.  It’s times like these that I really really FUCKING HATE having MS!!  I literally could NOT move my right leg when I attempted to get off the trolley.  It was like a 200 lb bag of sand.  Forget balance.  I would have been in deep shit, without help.  My companions, each gave me an arm and it took almost an hour to walk the 1/2 mile back to our apartment.

First order of business

20180405_210948Since she knows my struggles with technology, more specifically the UBER app on my phone, my niece handed me a beer, and took over the “troubleshooting”.  When she handed the phone back to me,  Uber was gone and LYFT was installed.

“The drivers are nicer, and it’s cheaper too”, she said.

As long as I didn’t have to go anywhere else for the night, I didn’t care.

Thank you kiddo for being my “Saving Grace”!!!!!

We spent the rest of the night catching up, and talking about our plans for the next couple of days.  (The best part was yet to come)  The next day I would be meeting some fellow bloggers…. IN REAL LIFE!!!!!

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Before going to bed for the night, I went out to my “cigarette corner” for one last smoke….and met this cute little guy…and his owner too.  One cigarette turned into, well lets just say a few more…and a couple more beers.20180405_235620

I have to share this picture because his story amazed me.  Cody is a 31 year old Russian translator in the peace core.  When I asked him why he decided on the Peace Corps., he said, “Because I wanted to help!”  We talked about backwards medical practices, debated about universal healthcare, and talked about the downfall of humanity in general.

While navigating Boston wasn’t easy for me, it was a beautiful city, and I met many fascinating people.

I went to sleep that night knowing that “Superman” would come “save me” in the morning.  I will write about that soon…. I Promise!