I received my # 95th dose of Tysabri yesterday, and FINALLY did the bloodwork for The JC Virus that is required.
While writing My decision to start Tysabri (the 5 part series) last week, I was able to work through my emotions regarding pressure to change medications and I have solidified my decision to stay on Tysabri. Maybe not for the rest of my life, but for now, it works. I am fully aware of the risks associated with remaining on the drug, but this is MY Decision, My MS, and MY LIFE. (I may have to work on finding a new doctor soon, but I will deal with that when the time comes as well.)
So to answer the question, “Why did you choose Tysabri?”
BECAUSE FOR ME, IT WORKS!
I am fully aware of the risks associated with the drug, but I believe….
I did not ASK for MS, but you play the hand you are dealt. I would rather have QUALITY of life than Quantity. Hell, I jumped out of a perfectly good airplane remember? Both of my daughters are in their 20’s, and although none of us want to “say goodbye”, I know they are strong and have all the tools they need to survive in this world. Hell, I believe they are also strong enough to help change it. The world we live in today is a scary place. (I think the city I live in was ranked the 6th most dangerous city in the United States.) My point is that I am more likely to be shot sitting at a traffic light, than to die from MS or PML. When I do die, whatever the cause, I am donating my body to science. Maybe they can find a cure for MS that way?
For now, I am making the most of each day I have. If I can help ONE person feel not so scared and alone in this world… I have lived.