Choosing Tysabri

I received my # 95th dose of Tysabri yesterday, and FINALLY did the bloodwork for The JC Virus that is required.

While writing My decision to start Tysabri (the 5 part series) last week, I was able to work through my emotions regarding pressure to change medications and I have solidified my decision to stay on Tysabri.  Maybe not for the rest of my life, but for now, it works.  I am fully aware of the risks associated with remaining on the drug, but this is MY Decision, My MS, and MY LIFE.  (I may have to work on finding a new doctor soon, but I will deal with that when the time comes as well.)

So to answer the question, “Why did you choose Tysabri?”

BECAUSE FOR ME, IT WORKS!  sliding into the grave

I am fully aware of the risks associated with the drug, but I believe….

I did not ASK for MS, but you play the hand you are dealt.  I would rather have QUALITY of life than Quantity.  Hell, I jumped out of a perfectly good airplane remember?  Both of my daughters are in their 20’s, and although none of us want to “say goodbye”, I know they are strong and have all the tools they need to survive in this world.  Hell, I believe they are also strong enough to help change it.  The world we live in today is a scary place.  (I think the city I live in was ranked the 6th most dangerous city in the United States.)  My point is that I am more likely to be shot sitting at a traffic light, than to die from MS or PML.  When I do die, whatever the cause, I am donating my body to science.  Maybe they can find a cure for MS that way?

For now, I am making the most of each day I have.  If I can help ONE person feel not so scared and alone in this world… I have lived.

 

 

 

8 comments

  1. I am so glad that Tysabri is working so well for you! I do not understand why the doctor would even think about switching medication when what you are on is helping!! What in the world is he trying to switch you to? Continue standing your ground. You are right it is your MS and your body, so all of this is your decision and only yours!!

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      1. Ocrevus? Oh no do not let him try to pressure you into something else when the medicine you are on is working for you. I mean if he could tell you that the medicine you are taking is not working anymore and you need to think about a new one, I personally would not switch. Plus, Ocrevus is still very new and it would be best for it to have all the kinks out. I have never been comfortable being on something that was just released a few months before. I agree if it’s not broke, don’t fix it!!!

        Liked by 1 person

      2. yes, I believe I will be looking for a new doctor if he keeps pushing. It really stressed me out when I got his letter telling me he wants to switch me ( hence the reason I wrote so much about Tysabri last week)

        Liked by 1 person

      3. I might sound a little crazy but sometimes I think doctors get a certain kick back for some medications. My doctor tried pushing me to do Ocvevus but I said no. I said no several times before she finally understood. Our doctors are supposed to respect our wishes not push us to do what they want us to do, especially if it is not really in our best interests. You should do what you are comfortable with, now if there comes a point that Tysabri is not working as well as it used to, then I would understand a doctor talking about a change. But, until and if that ever happens you continue what you feel is best for your body!!

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