Post op update

So many of you know that I had surgery on Tuesday, but I don’t know if I have ever explained the history to why I needed the surgery, or what the surgery was for.

Two years ago, I broke the first metatarsal in my right foot.  I was in a walking boot for a total of 6 months off and on.  During the treatment, I had cortisone shots, physical therapy, and was diagnosed with Osteopenia.  I had custom orthotics made for my shoes etc.  For the last two years, the pain has always been there, but it has been bearable.  When I would over do it, the doc would advise me to wear the boot for a couple of weeks or use my wheelchair , do R.I.C.E. therapy, and take some drugs.

About a month? ago when I started walking on a daily basis, my pain got worse and worse.  My foot began to be black and blue on a daily basis.  I went to see the doctor and was advised that I had gout, I DIDN’T.  I try to give everyone the benefit of the doubt.  In the doctor’s defense, I WALKED into the office, granted I was limping from the pain, but I did walk.  Maybe he thought, if I was in that much pain, I wouldn’t have been able to walk?  Whatever the case, he sent me home with an order for RICE therapy again (REST, ICE, COMPRESSION, ELEVATION)  and another RX to try.

The pain got so bad I ended up at immediate care where they finally did xrays and determined that not only had I broken my foot again, but I also had severe arthritis.   I had surgery on Tuesday.  The short story is that they cleaned up the arthritis, and have inserted a plate and screws to fuse the bones together.  I was sent home bandaged and in a CAM boot to my knee.

Here’s the part where I get really angry

Before surgery I was told that after surgery I would be placed in a non removable, non weight bearing cast until I followed up with the doctor to have the stitches removed.  I planned for that.  What I DIDN’T plan on was all the conflicting information.

I came home in a CAM (walking boot) with verbal instructions to stay in bed with my foot elevated above my heart for 3 days, applying ice 15 mins on 15 off for the same amount of time.  After 3 days, I could spend some time out of bed, but was still supposed to stay off of it and keep it elevated as much as possible.  The boot was not to come off until my first post op appointment next week.

The surgery center called the following day to see how I was doing and how often I was bearing light weight on my foot.  Had I taken the boot off to do ankle circles etc?

smh 2

HUH?!?!?!

I was told NOT to take it off?!??!?!?

My parents, who had stayed the night with me after surgery reiterated that the doctor said the boot does not come off under any circumstances and absolutely NO weight on it.

I found the written instructions from the surgery center which give me a third set of instructions and all of them are conflicting.

I’ve called the surgeons office and can only get a nurse on the phone.  Her instructions are to bear weight on my foot as tolerated.  ( walk to the bathroom with the CAM boot on, but don’t get the mail, cook dinner etc.)

Here’s another problem…. I can’t bear ANY weight on my foot.   The pain is excruciating!  How do you define as tolerated?  Is MS making me feel pain that isn’t there?

After I got home from surgery, my father told me that the doctor said he could not believe that I was able to walk at all with such a bad break, or that I had been able to tolerate the pain for as long as I had.  I don’t think I have a high pain tolerance, I think it has to do with just doing what you need to do, something I have had years of practice doing because of living with MS.  I know that MS screws with the way my brain interprets pain.

I don’t want to do more damage, or screw up the surgery.  I don’t know who to listen to.  I don’t trust my own ability to make decisions because of the pain pills, and I’m very emotional……not to mention bored out of my mind.

I don’t expect anyone to give me answers or fix this for me, I just needed to get it off my chest, and did want to let everyone know that I did survive surgery and really appreciate all the thoughts, prayers, and well wishes.

I am going to go with the thought that even the doctors don’t know, after all they are just practicing.  ARGH…..

 

44 thoughts on “Post op update

  1. Oh Grace, I’m so sorry you’re having to deal with this on top of everything you’ve already had to go through to even have your surgery in the first place. I know it has to be frustrating and a little scary for you. Hopefully you’ll be able to get the answers you need to be able to heal completely. I’ll be praying for you, my friend!

    Liked by 2 people

  2. Since I can’t be there to sign your cast (and maybe it’s not the kind that can be signed, and I don’t know if that’s a thing people still do) I’ll just say I hope you feel better soon and get some decent information.
    You probably know the old joke where a guy says to his doctor, “It hurts when I do this” and the doctor says, “Well, don’t do that.” Most people don’t know there’s a third part to that joke where the guy punches the doctor in the face.
    It’s a much more satisfying ending.

    Liked by 4 people

    1. When I have had fiberglass casts in the past, yes I let people sign them (yes people like to do that still), even my dogs paw prints have been on them. The thing about the doctor joke is, yes I have heard a version of it, but when they send you to PT physical therapy, pain and torture however you want to look at it, they say no you have to work through the pain….. I say I would like to put them both in a room and make them listen to me…THAT would be almost as satisfying as punching them in the face

      Liked by 1 person

  3. I’m so sorry you’re having to go through this Grace. That’s just ridiculous being given conflicting advice, and I wouldn’t know what to do either. I so hope you can get the correct advise soon, and I agree about listening to your body. Take care and sending lots of hugs. xxx

    Liked by 2 people

    1. Thanks for being there Heather. After typing everything out and shedding some tears, I am calmer now…I had the surgery to stop the pain and if I keep it up there isn’t much pain, so I’m gonna go with that until I see the doc next week

      Liked by 1 person

    1. Yes! I told my husband after my back surgery, I wish the surgeon could feel this intense pain, he said, he doesn’t need it, yes, but at least they’d be more sympathetic to their patients – at least the ones that lack it.
      They have zero clue on what it feels like.

      Liked by 3 people

      1. Yes, it definitely tops all the surgeries I’ve had too. They placed a shunt in between my spinal cord, turned me on my side made an incision, turned me on my back to finish at the belly button – so fun 😣 I have surgery coming up to remove my thyroid in November. I’m telling you the excitement never ends! 😌

        Liked by 2 people

  4. That just stinks Grace!!!
    It is also quite odd that you tolerated walking on it broken but can’t stand the intense pain know that it’s mended together. I would be terrified to walk on it too. Not only the horrifying pain but also because I would be so concerned about doing damage. The DOCTOR HERSELF TOLD YOUR PARENTS TO TELL YOU TO STAY OFF OF YOUR FOOT—CORRECT?
    When do you go back for post-op apptmt?
    Are your parents still there?
    I’m sorry friend!!!! You are in my thoughts. 🎁 🍷 🍷 💝 🍷 🍷 🍷

    Liked by 1 person

    1. Yes the surgeon told my parents no weight whatsoever, but after the third call to his office and a different nurse saying that she talked to him and her relaying that I should try to put some weight on it, I did. It hurt so bad I passed out, so I won’t be doing that again! As you know, it’s hard for parents to watch their kids in pain. It’s also hard to watch your parents be in pain because they can’t help you, so I asked them to go home and promised to call if I needed anything. I see the surgeon on Thursday, as far as I’m concerned, I will just use the wheelchair til then….it’s frustrating as hell, but ice cream, the company of some friends, and the tears helped a bit….I don’t want to do more damage and that pain was nuts…. On a plus side, if I don’t try to use it, I don’t need to take the pain pills anymore either?

      Liked by 1 person

      1. Trust your instinct Grace!! I would do exactly what you are. I’m sorry for your pain and the extreme frustration of all the miscommunication.

        Ice cream 🍨 🍦 makes everything better for me!!!
        What’s your favorite flavor?
        Here in US we have Baskin Robbins — I thoroughly enjoy every lick of Chocolate Peanut Butter!!!! 😋

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      2. My grandma 👵🏼 used to make truly the best homemade vanilla ice cream. I would love to have it one more time. Nobody has ever been able to duplicate it😔!! I hope your feeling better Grace. Thursday is coming!! 🤞

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      3. Grandma’s has the BEST recipes for everything!!!! I used to spend hours in the kitchen with my Grandma, when I would ask her for the recipe her measurements were always a little of this and a little of that…my little of this is definitely NOT the same size, alas, I only have4 memories

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  5. I am so sorry you are dealing with so much right now. Pain, frustration, stress and MS are not a good combination. I do believe doctors have lost their ability to show compassion and empathy. I hope you get some answers soon. Stay on top of these doctors, until they dread your calls and then they respond faster! I hound my doctor when I need answers until she just answers me because she doesn’t want to hear from me anymore. It is an annoying way to do things, but we have to do what we have to for our own health!

    Liked by 1 person

      1. You are so much stronger than you give yourself credit for. You are my role model sweetie! You are not only kind and incredibly strong, but you are one of the most sarcastic people I know! Sarcasm gets me through life!
        My work week is getting shorter. I have a secret!!!! I have an interview at Habitat for Humanity in the city we are trying to move to. It is Wednesday, so I am going to call into work! I REALLY want this job because it seems like a great company to work for!!!!!

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  6. Good grief, Grace. How hard is it to know the right thing to do if you are a medical professional?! What a joke! I am pleased you are out of surgery and on the road to recovery. Thinking of you and sending lots of love your way!! xo

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