“Running” from Anxiety

I’m starting to think that trying to run from anxiety doesn’t work.  I thought I was done packing, my suitcase is totally crammed, yet anxiety has still found me and is trying to find a place amongst my trip.  YOU CAN’T COME WITH YOU CRAZY BITCH!!!!!!! (anxiety)

I woke up this morning after my Tysabri infusion (recharge) yesterday feeling great.  My suitcase has been packed for two days.  I even had the forethought to wear both a hooded sweatshirt AND my leather bomber on the plane to “save space” in my suitcase (did I mention my suitcase is REALLY REALLY packed?)

For some reason, BEFORE I leave for a trip I have to clean my house entirely.  This includes floor washing, laundry completed, all garbage cans emptied, and all projects “put away”.  While most of the new tub was installed last week, I still had some caulking and “void filling” to do from where the old tub was.  So since the housework was done, why not “knock that out” too?

There is NOTHING GREAT about “Great Stuff”

That shit is Evil!  and now….. it is Everywhere….including my hands.  Normally this wouldn’t really bother me much, it will wear off and where the hell am I going that someone is going to examine my hands….. and then it occurred to me……

When I have my “pat down”  at security tomorrow morning, they are also going to swab my hands to test for something.  I still never bothered to ask what they are testing for, I just know that they are going to test. (I assume bomb making chemicals or something)  It’s never been an issue, so I just let them do their thing.  BUT, I probably shouldn’t put pure acetone on my hands, or paint thinner, or gasoline…etc etc…  How the hell do I get this off?!?!?  OMG what if “GREAT STUFF” has the chemicals in it that will make it look like I made a bomb?!?!?    I thought about googling it, but then worried that I would be red flagged for googling such a thing before getting on a flight (hell writing this post may be the only red flag they think they need)

Yes I do realize that I have absolutely NO CONTROL about what will happen tomorrow.  What’s done is done.  But it took me two hours (and a beer) to calm down enough to put things in perspective.  I HATE ANXIETY!!!!!

While in panic mode, I called the airline to make sure they knew I needed a wheelchair and I searched for a blog that Damn Girl Get your shit together wrote a couple of weeks ago about What to do when you are freaking the fuck out. While rereading her post, I also remember commenting on it, but couldn’t remember what I had said other than “Yep, I need to do that”, so I searched for my comment and reread it.  I meant what I said about putting things in perspective, but I had forgotten.  As I was thinking, I also remembered that I have survived worse, and my breathing finally started to slow down.

I think the real problem is that I try to CONTROL too many things.  So what if they question me at security?  Worse case scenario, I have a great story to tell in the future.  I already know that it takes me longer to get through security than most people and have planned to allow extra time.  My flight leaves at 6 am, we will be there at 4 am, and what happens will happen.

Three friends have texted me that Chicago is “getting hit” with a wintry mix of snow/rain/ and freezing temperatures tonight.  Ok, so maybe I have to leave my house a bit earlier than 2:30 am?  (this won’t be the first time I have had to spend the first 8 hours of my trip sleeping)  More on that trip another time though.

One beer, has now turned into three, and I need to finish making dinner for my traveling companions who should be here soon.  See you all in a week!!!!!

Watch out Boston….Here I come

We “descend” on Boston at 9 am next Wednesday

When I started planning this trip in January, I had hoped to document and share any tools or tricks that I had learned to make traveling with MS easier, but then…..well you know, LIFE HAPPENED….. The last couple of months have been filled with so many life changing events, that I could barely make it through the present let alone write about it.

The week after I purchased our Airfare to Boston, I started investigating whether or not to rent a car while we were there.  The AAA  guide book I ordered says, and I quote….

Ralph Waldo Emerson once observed, “We say the cows laid out Boston.  Well, there are worse surveyors.”  Emerson, of course, never had to drive through the city.  Downtown- occupying a peninsula surrounded by the Charles River, Boston Inner Harbor and Fort Point Channel- is a challenging place for residents, let alone visitors, to negotiate by vehicle.  Furthermore, Boston drivers are legendary for their aggressiveness.

This kind of makes me wonder what AAA says about Chicago drivers.  (I am tempted to see if my picture appears somewhere as an example of aggressive.)

Ok, So we are NOT RENTING A CAR!!!.

Public Transportation or Uber.com?

A couple of people suggested using Uber.com for rides instead of relying on the MBTA.  “It’s just like taking a cab” they said.  (One person even offered that we would have less of a chance of sitting in CUM STAINS with Uber) EWWWWW!!!  I guess I should have mentioned that I have also never taken a cab before.  I grew up beyond the sticks- literally in the middle of nowhere.  Public transportation did not exist.  Remember the post about riding a horse on a subway?

I have to learn everything I can about everything, so after spending almost an hour on their website reading all the FAQ’s, I entered a “test” route to check rates.  The rate was almost $30.00!  I can drive this same distance in my car in 20 minutes and it only costs me $25.00 to fill my whole tank.  I was shocked!  People actually do this?!?!….ahhh but I guess you would have to pay for parking etc if you didn’t?!?!?   I am hoping the rates for Uber are cheaper in Boston, but just in case….

We decided to stay close to the Boston Convention Center, (the actual purpose of our trip).  I began to investigate hotels within walking distance of the convention center.  OUCH, just ouch!   A ” simple” google search “hotels near the Boston Convention Center” produced  1,060,000 results (0.87 seconds).  Of course I had to investigate them ALL…. Booking.com, Expedia, Orbitz, hotels.com, kayak to name a few.  I couldn’t find anything for less than $200.00 a night.   After a couple days of this, I stumbled on Airbnb.com.

What is Airbnb.com?

For those of you not familiar with Airbnb.com the explanation on wikipedia is here: What is Airbnb?, they also have pages and pages of FAQ’s on their website At first glance, I was a little intimidated by the thought of staying in a strangers house or apartment, so I just bookmarked the site to go back to .  I looked at hotels in other cities for cheaper prices, but they included an hour or more time on the train to and from Boston…… Ok staying at a strangers house it is……  Well a couple of different stranger’s houses, but I will have to write more about that later.

I have given both my kids names, addresses, contact information etc in case I get “lost”.  Can you think of anything I am forgetting?  Do you think Boston will leave an impression on me, or that I will leave an impression on Boston?

 

 

 

 

 

 

 

SO. DAMN. PROUD!

If I told you that I don’t worry about my daughter, you would probably think that I was a monster, but I don’t.  I honestly, don’t “Worry” about her at all.  Now LOVE her?. That is a completely different story!  Of Course I do!!!

TO THE ENDS OF THE UNIVERSE and then some.

Have you ever gone to a wedding and felt like YOU were the guest of honor?  (Your own wedding doesn’t count)  I’m still not sure HOW she pulled it off, but I think everyone who was there that day will agree that it was an honor to be included in HER DAY.

I think I have to try to “stick to the facts” when I talk about Thing One’s Wedding.   My usual words like Fuck, Shit, and Damn have no place in this story, …..yet WONDERFUL, MAGICAL, FAIRYTALE, and PERFECT, really don’t scratch the surface.  To say I am Proud would be an understatement. Honored seems hollow, however, MY HEART IS FULL!!!

Friday, March 9, 2018

Einstein and I arrived at Thing One, and her fiancee’s house at 10 am.  The hotel and venue were two hours away, and we told Thing One that we would be her “beck and call people” for the day.  “Just tell us what you need kiddo, and it’s done.”

 

She handed me the schedule for the next day to look over, and the book that would be used to hold the officiant’s notes for the ceremony, asking me to remove the sticker from the cover.  Truly, trying to get that damn sticker off with fake nails was the most difficult thing I had to do. I called the hotel, and asked if we could check in early because we were so ahead of schedule.   The coordinator said, “Yes we have yours and your daughter’s room’s ready, Come on in.”

 

Because so many people were coming from out of town, Thing One had reserved a block of 25 rooms for her guests.  She didn’t tell us that she had used hotel points to upgrade us to a suite.  Believe it or not, our suite was not even half the size of the kids suite!!!

The guys made quick work of unloading the cars, and then the four of us went to lunch at the hotel’s restaurant while we waited for the venue to open so we could start decorating.

We ate lunch, drove the mile to the venue, and began carrying the totes full of decorations inside.  When we opened the doors to the banquet room, everything froze. I looked at my daughter’s face as she saw that The Banquet hall had not even begun cleaning up from prior evenings event.  It only took ONEtear rolling down my daughter’s cheek for me to launch into Lieutenant mode.

Wait a minute Grace, I thought you said EVERYTHING was perfect?

No, I am not a masochist, but I am a “fixer”!!!!

FINALLY, something that I COULD DO to help!!!!!!

crew rehearsal

My daughter has her own army

The entire bridal party came to help clean and decorate.  Within a couple hours, the hall was mostly decorated and we were able to begin the wedding rehearsal.  I’ve never lead a rehearsal before, so it did take a couple of “run-throughs” before I got that part right.  But all in all, it was ALOT of fun.  We all left the venue and headed to a local pizza place for dinner.  Hours of good food and company!

When the evening was over, Einstein and I were sitting in our room talking about how proud we were of Thing One and her fiancee.  They are both incredibly strong, intelligent, and outgoing people.  They have both put in a lot of hard work to achieve their dreams, and the love and respect they share for each other can be felt for miles.  As we were getting ready to sleep…. Thing One texted me….

“Mommy, open your door?”

I looked at the clock, sure enough…… 11 O’ clock on the dot!!!!!

I know that I said I was going to stick to the facts and leave emotions out of this story, but here’s the thing…  For as long as I can remember all of the  “heartfelt, tearful, world changing” conversations that occur between THING ONE and I have always begun at 11 pm.  Her choice, not mine.  She had told me a couple days prior to this that she had a letter she wanted me to read at the rehearsal dinner.  I gave her 10,000 excuses why we didn’t need to do THAT, and thought I had managed to avoid it.  kids

But here they were at 11 O Clock, using the word, “Mommy”…..

letter

 

 

 

 

 

For all you sadists out there…..

Yes I read the letter.  NO not on video. Yes I do cry and here is the picture to prove it…..

emotions

Saturday, March 10, 2018

The morning started with Breakfast in Thing One’s Room.  The make up ladies, showed up to her room soon after.

 

Thing One, let me go first so I could make a “break for it” ( I don’t do good with a room full of girls being girls), no matter how nice they all are.  I also do not sit still very well.

 

So I got to go first and then was tasked with making sure everything was “Fixed” at the venue and making sure everyone was were they were supposed to be.  YAH “busy work”.

I spent the next several hours running between our hotel rooms (the guys were in mine and Einstein’s suite and the ladies in Thing One’s) and the Venue.  FTR I only knocked on the wrong room door one time 😛

 

I took pictures and video to “report back” that everything looked perfect… You tell me?

aisle
The Ceremony
decorations
Banquet Room

The 3d printed centerpieces and table numbers we made, turned out beautiful as well

centerpiece

finishing touchesAs Five O’clock drew near, Thing Two helped Thing One with the finishing touches…

The Bridal party took the shuttle to the venue.

Einstein and I loaded Thing One AND her dress into the car and headed to the ceremony.

(I don’t have any pictures of this yet, but I will share some pictures that have been shared with me from the remainder of the evening below)

 

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Now, I hope you can see why I can’t find the words to describe just how perfect the entire weekend was.

stairs

Dearest daughter of mine,

As I mentioned before, I do not worry about you.  I don’t have to!!!!  You are smart, beautiful, caring, determined and independent.  You’ve Got this! You posted the picture that I used as a featured image on this page to your facebook page with a caption stating that I was the greatest woman you know.  You wrote me a letter that made me cry.  (and bought me an awesome “mother of the bride” coffee mug.)  In your marriage, you have also given me a “son”.  I am so sorry that I’m not good with words, but please believe me when I tell you…..

YOU are the Greatest Woman I know!!!! and having you as my daughter is the GREATEST GIFT of all!!!!

 

They call it the flu.. I call it fucking life up

I’ve been through a lot in my life, is it possible that I have never had the flu before?!?!  Maybe I caught some special breed of this monster?  Whatever the hell you call it, it seriously fucked me up.

As many of you know, Thing 1 Got married on March 10th.  We went out of town for her wedding on the 9th, and from the moment we walked out the door the entire weekend was MAGICAL! (I have pictures and video to prove it!) Literally EVERYTHING was perfect.

At 6 am on March 11th, I closed the door to our hotel suite saying goodnight to the last “after party” guest.  I climbed into bed next to Einstein and smiled.  Our princess really was a princess!!!!  What a wonderful weekend!

Did you know that today is March 20th?  Trust me it is!  ( I have checked the TV, the Computer, and my phone 3 times)  How the hell did this happen?!?!  10 days!!! I have “missed” 10 days!!!!  Where the hell have I been?!?!?

Again, they call it the FLU.  Oh I’ve got some words for it, but autocorrect keeps changing what I say into “#$^$#^@#$(%$)”  I keep trying to fill in the ” missing pieces”, but I can’t believe it’s been 10 days.  Where the hell have I been for 10 days?!?!?

The answer is Horizontal. Drugged, in a daze etc.  Apparently, I caught the flu and it literally kicked my ass or fucked life up.  I remember arguing with Thing 2 about going to the Emergency Room.  (In hindsight, Never have I been so grateful that she doesn’t take no for an answer.)  The fever that I had been fighting reached 104, my oxygen sats were in the 80’s, and I got dehydrated.  I’m home again and I today I am vertical, but that’s all I’ve got for now.  I have a feeling this is gonna be a long road.

Still recovering

I would really really really like to share the details of the amazing weekend we had, unfortunately at the moment staying vertical for more than 30 minutes at a time is a challenge.

Thing 1’s wedding was amazing.  The entire weekend was amazing.  MS didn’t stop me from having an incredible time, however, now it seems to be time to “pay my dues” or let it be for a bit.  I won’t go so far as to say I am having a flare up, more a pseudo exacerbation coupled with a cold, the flu…or whatever is causing me to have a fever of 102 with body aches.

Thank you to everyone that has reached out to ask if I am ok.  I will be!… For now I just am.  One day at a time.