Tag: trust yourself

Update on October Goals

~ msgracefulnot ~ 3 Comments

As I look back on the month of October and where I stand with accomplishing the goals I made for myself I realize I am happy with the results.  To see my October Goals, click here: October Goals.

150I did make it under 150 lbs. Seriously! The scale said 149.8!!!!  I jumped off to get my phone to take a picture but apparently the  phone weighs 100 lbs… (I mean about half a pound.)  GRRRRR!  But YAH ME!  AND I learned many things in the process, so I count that as a win.

As far as learning wordpress, I had intended to watch endless hours of videos and read every article that I could find. ( very unrealistic I know) Instead, I just continued to write and click buttons.  I have learned a bit more about putting in a link, and how to move pictures around with word wrap.  (not perfect still, but again a win)  I have also met so many new people, and found a couple of blogs that I enjoy.  So that’s a double win! 😛  But most of all I am having a blast, and stepping out of my comfort zone.

The final goal I had was working on my cross-stitch.  I thought I would have finished the entire lower left corner that I had outlined in my picture. (HA HA, more than a little unrealistic)  I actually did get a lot done on it though, considering everything else that has been going on.

As I sat looking at the chart deciding where to go next, I realized that there are so many “pieces of the puzzle”, that it didn’t really matter where I started, as long as I started and continued working on it.  I had forgotten that focusing on the pattern helped me to FOCUS on something when my mind was doing it’s “blender thing”.  So I’m gonna count that as a win too.

I think there is some unwritten self sabotaging law out there that says for everything you cross off your to do list, 5 more “to do’s” appear.  I’m am determined not to let myself  be burdened by that. I have a “General Goal” for November, and the rest of my life. Continue moving forward.  Making small goals, and moving forward to accomplish those goals has given me a boost in my otherwise lacking self confidence.  I need to work on Trusting myself and remembering that the only person I am in competition with is myself.  Competition to try new things, and to be a better person than I was yesterday.

 

Choosing Tysabri

~ msgracefulnot ~ 12 Comments

I received my # 95th dose of Tysabri yesterday, and FINALLY did the bloodwork for The JC Virus that is required.

While writing My decision to start Tysabri (the 5 part series) last week, I was able to work through my emotions regarding pressure to change medications and I have solidified my decision to stay on Tysabri.  Maybe not for the rest of my life, but for now, it works.  I am fully aware of the risks associated with remaining on the drug, but this is MY Decision, My MS, and MY LIFE.  (I may have to work on finding a new doctor soon, but I will deal with that when the time comes as well.)

So to answer the question, “Why did you choose Tysabri?”

BECAUSE FOR ME, IT WORKS!  sliding into the grave

I am fully aware of the risks associated with the drug, but I believe….

I did not ASK for MS, but you play the hand you are dealt.  I would rather have QUALITY of life than Quantity.  Hell, I jumped out of a perfectly good airplane remember?  Both of my daughters are in their 20’s, and although none of us want to “say goodbye”, I know they are strong and have all the tools they need to survive in this world.  Hell, I believe they are also strong enough to help change it.  The world we live in today is a scary place.  (I think the city I live in was ranked the 6th most dangerous city in the United States.)  My point is that I am more likely to be shot sitting at a traffic light, than to die from MS or PML.  When I do die, whatever the cause, I am donating my body to science.  Maybe they can find a cure for MS that way?

For now, I am making the most of each day I have.  If I can help ONE person feel not so scared and alone in this world… I have lived.