I have tried so many times to write a blog or make a video for someone that is newly diagnosed with MS, I write 1000’s of words, then I reread what I have written, only to realize the advice doesn’t apply to everyone.
The reason for this is that MS is not a “one size fits all” type of disease. I don’t mean because there are 4 different types of MS, I mean because it affects every single person differently! EVERY SINGLE ONE!
Not only will MS affect YOU differently than it affects your cousin’s sister’s uncle’s aunt that has MS, but any treatments YOU might try will affect YOU differently as well.
I have made this video, more than anything so that you realize YOU ARE NOT ALONE! As you wade through information on Dr. Google, and hear stories from other people PLEASE, PLEASE, PLEASE keep in mind that people are only sharing THEIR STORIES. (and negativity breeds negativity)
Some people will tell you to read everything you possibly can about MS. (Dr. google is a scary monster) Others may tell you to join support groups, Facebook groups, eat an all natural diet, take this drug or that drug. My cousin swears that “…..” works….BUT you need to pick what works for you.
MS is unpredictable. There is good and bad information to be obtained from the internet and social media. If you keep an open mind and are aware of the possibilities, you only prepare yourself for the worst case scenario. You can’t live your life in fear of the unknown, THAT alone can paralyze you.
Below is another video in which I talk about not only how I was diagnosed, but also how I “met MS”.
So my advice to EVERYONE that has been newly diagnosed with MS or another chronic illness is to:
- Take a deep breath
- Take another one
- Acknowledge that while this may suck, there are worse things in the world
- Learn everything you can about your condition, BUT also pay attention to the source ( even if you learn what NOT to do)
- Advocate for yourself and do what works for YOU
- They call it “practicing medicine” for a reason. Get 2nd and 3rd opinions.
- Surround yourself with positive people
- Learn to laugh at yourself
As I mentioned at the beginning, it feels like a whole different lifetime since I was diagnosed, (and it has only been 20 years) New ideas and treatments are coming out and being discovered every day. Never give up!
If you are looking for a place to start your research, here is a link to the National MS Society.
If you need to talk reach out, send me a message, ask tons of questions. In the upcoming week, I have asked 3 other bloggers with MS to share their stories on this page, and or to share their advice about what does and doesn’t work.
This Best of luck to you on this journey!