It feels like I have been to hell and back, AND I’ve got the scars to prove it. ( I could share a post about the scars alone, but let’s not do that now)
I still laugh when I tell someone that I started a blog about MS several years ago, yet I can’t remember one post I made about MS. ( Ok, I do remember advocating for Tysabri and bladder incontinence treatments, but not much else) If I remember correctly, 80% of what I what I wrote involved aging, empty nest syndrome, traveling, my kids, a bit about my grandkids, and let’s not forget Einstein and all that bullshit.
While I am no longer at my “rock bottom”, I also don’t want to rehash everything that has happened yet. Instead, let me highlight a few of the BIG changes that have been going on (in no particular order)
- I QUIT SMOKING!!!! Yes the 2 pack a day chain smoker for over 30 years quit smoking. It’s been over a year.
- I gained 20 lbs from quitting smoking
- I had a male best friend and a female best friend die. How fucking dare they?!?!? Didn’t they know I needed them?!?!?!?
- Maybe 10 more lbs gained from that.
- I had bladder cancer. I had surgery, I had BCG (chemo), was declared cancer free, only to have it come back. REPEAT (I had surgery, I had BCG treatments, and was told, “I don’t see any cancer, but we are going to repeat 1/2 a treatment of BCG for 3 weeks and then repeat a cystoscopy in August.) If they find cancer in August, I will lose my bladder ….. literally. 😦
- Not only did I have to stop Tysabri, I also had to stop all MS medications. HUGE increase in disability!
- I have at least 3 more surgeries this year….. blah blah blah
Can I just say, It’s been rough?
I can’t believe I didn’t mention. I FINALLY LEFT EINSTEIN. Left like moved out, no contact, ( other that minimum kid and dog stuff) Not sure which is the bigger accomplishment, quitting smoking or quitting him, but either way, YAY!!!
I also traveled to Seattle, and not only met, but also stayed with a blogger, author, and overall Rockstar that I have admired for several years. I WILL write more about that more in the future……
On that note, I am going to stop typing.
for now



